Health-Related Quality of Life for Carers

Identifying Attributes

Care Settings
Primary Care
Country
England
Publishing Organisation
National Health Service (NHS): Outcomes Framework
Type of Quality Indicator
Outcome
IOM Quality Dimension
Person-Centredness
Domain
Family and Carers

Defining Attributes

Definition

This measure reports the directly standardised mean quality of life score (using the EQ-5D) by those reporting to be carers.

Numerator

The numerator is the sum of the weighted EQ-5D™ index values for all responses from people who identify themselves as carers.

Denominator

The weighted count of responses from people who identify themselves as carers. Σ𝑘 (𝑤𝑡_𝑛𝑒𝑤𝑘 ) where k = 1, …, p are respondents who identify themselves as carers in the GP Patient Survey.

Exclusions
Use of Risk Adjustment
Yes
Risk Adjustments

Directly age- and gender-standardised

Stratifications

Age bands (18 to 24 then 10-year bands from 25 to 85+) Gender (Male, female) Ethnicity Sexual orientation Religion Deprivation deciles (from 1 – most deprived to 10 – least deprived)

Collection and Reporting Attributes

Type of Data Collection
Surveys
Data Collection Methods

GP Patient Survey (GPPS) from Ipsos MORI (www.gp-patient.co.uk) Survey of adults registered with a GP Practice in England. The GP Patient Survey is commissioned by NHS England and is conducted by the independent survey organisation Ipsos MORI. Patients are eligible for the survey if they have a valid NHS number and they have been registered with a GP in England continuously for six months or longer. Additionally, to reduce survey fatigue, patients are not to receive more than one GP Patient Survey in any 12-month period. The GP Patient Survey includes a weight for non-response bias. This adjusts the data to account for potential differences between the demographic profile of all eligible patients in a practice and the patients who actually complete the questionnaire. Incorporates age, gender, factors from area of residence (level of deprivation, ethnicity profile, ACORN classification).

Frequency of Data Collection
Annually
Frequency of Data Collection in Days
365
Reporting Methods

Published annually - from 2016/17 onwards one survey wave covers January – March, prior to this two survey waves per year covered July – September and January – March.

Reporting Frequency
Annually
Reporting Frequency in Days
365
Indicator Has Recommended Targets
No

Source and Reference Attributes

Link to Measurement Tools

EQ-5D™ instrument. www.euroqol.org/fileadmin/userupload/Documenten/PDF/Crosswalk5L/EQ-5D™-5LCrosswalkmodel_and__methodology.pdf. EQ-5D™ is a registered trademark of EuroQol. Further details are available from www.euroqol.org.

Quality Indicator Confirmed to be Part of a Program Used to Monitor Quality and Safety of Care Among Older People at a Population-Level between 2012-2022
Yes
Assessed by the Australian Consortium for Aged Care Collaborators as Generally Containing Good Properties (Importance and Scientific Acceptability)
Yes
Australian Consortium for Aged Care Endorsed
Yes
Identified by PHARMA-Care Project
No
Upload Date
02 December 2025