Quality Indicator Repository

Quality indicators are standardised, evidence-based measures used to monitor and evaluate the quality and safety of care. The ACAC developed a Quality Indicator Repository. For information on its development see this document.

Please navigate the Quality Indicator Repository to learn about the quality indicators we identified across care settings and their defining, data, and source attributes.  You can also use the Quality Indicator Repository to download quality indicators of interest to you.

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Palliative CareIrelandHealth Service Executive (HSE) Performance Reports

To determine the percentage of patients accessing specialist palliative care inpatient beds within seven days. This is the calculation of the number of patients who were admitted to a specialist palliative care inpatient bed within seven days of receipt of referral expressed as a percentage of the total number of patients admitted in the reporting month.

Palliative CareBelgiumQuality Indicators for Palliative Care (Q-PAC)

Did you feel that the professional carers gave you all the help and support you needed to care for your relative?

Palliative CareBelgiumQuality Indicators for Palliative Care (Q-PAC)

Did you feel supported by the professional carers immediately after the death of your relative? Was there a farewell- or staff appraisal interview that looked back on the care and treatment that was provided? Were the possibilities of after-care pointed out to you after the death of your relative?

Palliative CareUnited States of AmericaPartnership for Quality Measurement Geriatric and Palliative Care Project (formerly known as National Quality Forum Palliative Care and End-of-Life Care Measures)

Percentage of patients aged 65 years and older who have an advance care plan or surrogate decision maker documented in the medical record or documentation in the medical record that an advance care plan was discussed but the patient did not wish or was not able to name a surrogate decision maker or provide an advance care plan.

Palliative CareSwedenSwedish National Guidelines for Breast, Colorectal and Prostate Cancer Care

Age normalised incidence of palliative radiation therapy for skeletal metastases in prostate cancer is a palliative care quality indicator described in the Swedish national guidelines for breast, colorectal and prostate cancer care.

Palliative CareUnited States of AmericaCenters for Medicare & Medicaid Services (CMS) in cooperation with the American Academy of Hospice and Palliative Medicine (AAHPM) & National Coalition for Hospice and Palliative Care for the Palliative Care Quality Measures Project

This is a multi-data element measure consisting of four data elements: Q1: "I felt heard and understood by this provider and team," Q2: "I felt this provider and team put my best interests first when making recommendations about my care," Q3: "I felt this provider and team saw me as a person, not just someone with a medical problem," Q4: "I felt this provider and team understood what is important to me in my life."

Palliative CareUnited States of AmericaCenters for Medicare & Medicaid Services (CMS) in cooperation with the American Academy of Hospice and Palliative Medicine (AAHPM) & National Coalition for Hospice and Palliative Care for the Palliative Care Quality Measures Project

The percentage of patients aged 18 years and older who had an ambulatory palliative care visit and report getting the help they wanted for their pain from their palliative care provider and team within 6 months of the ambulatory palliative care visit.

Palliative CareSwedenSwedish Register of Palliative Care (SRPC)

Was there an individual prescription of an injectable PRN drug against anxiety on the drug list before death?

Palliative CareSwedenSwedish Register of Palliative Care (SRPC)

Was there an individual prescription of an injectable PRN drug against death rattles on the drug list before death?

Palliative CareSwedenSwedish Register of Palliative Care (SRPC)

Was there an individual prescription of an injectable PRN drug against nausea on the drug list before death?

Palliative CareFinland, Ireland, Latvia, Norway, Sweden, United Kingdom, Channel Islands and Isle of Man, Austria, Belgium, France, Germany, Luxembourg, Netherlands, Switzerland, Croatia, Greece, Malta, Serbia, Spain, Bulgaria, Czechia, Poland, Armenia, Cyprus, IsraelWoitha et al. (2013)

Anticipatory medication for the dying patient is available for a palliative patient 24 hours a day, 7 days a week.

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults in the last days of life who are likely to need symptom control are prescribed anticipatory medicines with individualised indications for use, dosage and route of administration.

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults in the last days of life who are likely to need symptom control are prescribed anticipatory medicines with individualised indications for use, dosage and route of administration.

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults in the last days of life who are likely to need symptom control are prescribed anticipatory medicines with individualised indications for use, dosage and route of administration.

Palliative CareSwedenSwedish Register of Palliative Care (SRPC)

The withholding of artificial (or parenteral) nutrition/fluid in the last 24 h is perceived as good clinical practice and as a relevant quality indicator for care of the dying in Sweden. The end of life questionnaire item to measure this indicator is: Did the person receive parenteral fluids/nutrition during the last 24 hours of life?

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults who have signs and symptoms that suggest they may be in the last days of life are monitored for further changes to help determine if they are nearing death, stabilising or recovering.

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults who have signs and symptoms that suggest they may be in the last days of life are monitored for further changes to help determine if they are nearing death, stabilising or recovering.

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults who have signs and symptoms that suggest they may be in the last days of life are monitored for further changes to help determine if they are nearing death, stabilising or recovering.

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults who have signs and symptoms that suggest they may be in the last days of life are monitored for further changes to help determine if they are nearing death, stabilising or recovering.

Palliative CareUnited Kingdom, Channel Islands and Isle of ManNational Institute for Health and Care Excellence (NICE): Care of Dying Adults in the Last Days of Life Quality Standard

Adults who have signs and symptoms that suggest they may be in the last days of life are monitored for further changes to help determine if they are nearing death, stabilising or recovering.

Palliative CareBelgiumQuality Indicators for Palliative Care (Q-PAC)

Did the professional carers ask how you were feeling?

Palliative CareBelgiumQuality Indicators for Palliative Care (Q-PAC)

Have your professional carers checked how you are feeling?

Palliative CareUnited States of AmericaPrepare, Embrace, Attend, Communicate, Empower (PEACE) Hospice and Palliative Care Quality Measures

Percent of families reporting they were informed of what to expect around the time of death.

Palliative CareUnited States of AmericaPrepare, Embrace, Attend, Communicate, Empower (PEACE) Hospice and Palliative Care Quality Measures

Provision of interpreter or translators for non-English–speaking or deaf patients.

Palliative CareUnited States of AmericaCenter to Advance Palliative Care (CAPC) National Palliative Care Registry™, transitioned to Pallative Care Quality Collaborative Registry
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