Proportion of Patients Who First Received Specialist Palliative Care at Least 3 Months Before Death

Identifying Attributes

Care Settings
Palliative Care
Country
Australia
Publishing Organisation
Australian Institute of Health and Welfare National Palliative Care Measures
Type of Quality Indicator
Outcome
IOM Quality Dimension
Timeliness
Domain
Care of the Patient at the End of Life

Defining Attributes

Definition

This measure aims to assess the timeliness of receipt of specialist palliative care. The desired outcome is that more people who receive specialist palliative care do so at least 3 months before death. his measure is about ensuring that people with life-limiting illnesses receive palliative care in a timely manner. Data are not currently available on all palliative care delivered in Australia, so this measure focuses on those people who received "specialist" palliative care. However, many people with a life-limiting illness can be well managed by primary and community care providers and may not require specialist palliative care services. The computation is: (Numerator ÷ Denominator) x 100.

Limitations: It can be very difficult for treating clinicians to predict time to death at the time of treatment and prognostic uncertainty is a barrier to timely assessment of palliative care needs. Further, people with life-limiting illnesses may choose not to access specialist palliative care even when it is recommended by clinicians. Due to data availability this measure focuses on those people who received "specialist" palliative care. However, not all people with life-limiting illnesses require specialist palliative care, and a palliative approach to care can be adopted by all care providers.

Numerator

Number of people who died from a predictable death within the reference year and first received a specialist palliative care service (inpatient hospital care, outpatient hospital clinic services, and/or Medicare-subsidised consultations with palliative medicine specialist/physician) at least 3 months (91 to 365 days) before death.

Denominator

Number of people who died from a predictable death within the reference year and received a specialist palliative care service within their last year of life (0 to 365 days before death).

Exclusions

Excludes hospital data from Western Australia and the Northern Territory, and all private hospitals nationally for this analysis, for the reference period. It omits services received by patients in specialised palliative care units in private hospitals/facilities. Further, the scope of the data asset does not include all settings in which specialist palliative care services may be delivered, such as in community health settings or by allied health professionals (for example, care provided in the home, or by ambulance, disability, or aged care services) that are not captured through Medicare-subsidised claim items.

Use of Risk Adjustment
No
Risk Adjustments
Stratifications

Yes. Disaggregation by: State/territory, Age, Sex, Socioeconomic area, Remoteness Area, Cause of death, Service type (inpatient, outpatient, Medicare-subsidised).

Data Attributes

Type of Data Collection
Administrative data
Data Collection Methods

The Australian Institute of Health and Welfare (AIHW) National Integrated Health Service Information (NIHSI) linked data asset. The NIHSI, managed under the custodianship of the AIHW, is an enduring linked data asset that brings together state/territory hospitals data with national health administrative datasets using probabilistic linkage. Participation in and contribution to the NIHSI by states and territories is voluntary. However, this data collection does not present a complete picture of health service use, as it excludes hospital data from Western Australia and the Northern Territory, and all private hospitals nationally for this analysis, for the reference period.

Frequency of Data Collection
Annually
Frequency of Data Collection in Days
365
Reporting Methods

Public reporting.

Reporting Frequency
Reporting Frequency in Days
Indicator Has Recommended Targets
No

Source and Reference Attributes

Evidence Source

Australian Institute of Health and Welfare (AIHW). Development of the National Palliative Care Measures. Canberra (AU): AIHW; 2024. Available from: www.aihw.gov.au/getmedia/0ecbb5b1-4f83-4706-85ef-b0852318b7df/aihw-hse254-development-of-the-national-palliative-care-measures.pdf. Accessed 04 September 2024.

Quality Indicator Confirmed to be Part of a Program Used to Monitor Quality and Safety of Care Among Older People at a Population-Level between 2012-2022
Yes
Assessed by the Australian Consortium for Aged Care Collaborators as Generally Containing Good Properties (Importance and Scientific Acceptability)
Yes
Australian Consortium for Aged Care Endorsed
No
Identified by PHARMA-Care Project
No
Upload Date
12 March 2025