Did the Person Receive Information About the Transition to End-Of-Life Care
Identifying Attributes
Care Settings
Country
Publishing Organisation
Type of Quality Indicator
IOM Quality Dimension
Domain
Defining Attributes
Definition
Did the person receive information about the transition to end-of-life care, i.e. an individually tailored and informed conversation with a physician that is documented in the medical records about being in the final stage of life and about care being focused on quality of life and symptom relief?
Numerator
Denominator
Exclusions
Use of Risk Adjustment
Risk Adjustments
Stratifications
Stratified for deaths in or outside hospitals.
Data Attributes
Type of Data Collection
Data Collection Methods
The end-of-life questionnaire (ELQ) is the main source of register data in the Swedish Register of Palliative Care (SRPC) for patients dying in hospitals and other care settings in Sweden. Information is extracted from the medical records using a 27-item questionnaire and registered retrospectively online by a staff member involved in the EOL care of the particular patient.
Frequency of Data Collection
Frequency of Data Collection in Days
Reporting Methods
Public reporting.
Reporting Frequency
Reporting Frequency in Days
Indicator Has Recommended Targets
Source and Reference Attributes
Evidence Source
Lindskog, M., Mogensen, H., Tavelin, B. et al. Fluid therapy is associated with lower care quality and higher symptom burden during last days of life of patients with cancer – a population-based register study. BMC Palliat Care 23, 178 (2024). doi.org/10.1186/s12904-024-01504-5