Report to the Swedish Register of Palliative Care

Identifying Attributes

Care Settings
Palliative Care
Country
Sweden
Publishing Organisation
Swedish National Board of Health and Welfare (SNBHW)
Type of Quality Indicator
Process
IOM Quality Dimension
Descriptive
Domain
Structure and Processes of Care

Defining Attributes

Definition
Numerator
Denominator
Exclusions

None

Use of Risk Adjustment
No
Risk Adjustments
Stratifications

Collection and Reporting Attributes

Type of Data Collection
Standardised clinical data
Data Collection Methods

Swedish Register of Palliative Care

Frequency of Data Collection
Data collected via the end-of-life questionnaire (ELQ), after the death of a patient, focusing on the last week of life
Frequency of Data Collection in Days
Reporting Methods
Reporting Frequency
Monthly
Reporting Frequency in Days
30
Indicator Has Recommended Targets
No

Source and Reference Attributes

Evidence Source

The development of the Swedish Register of Palliative Care is here:https://journals.sagepub.com/doi/10.1177/0269216311414758. The description of the Swedish National Board on Health and Welfare national indicators used for quality monitoring are here: www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/nationella-riktlinjer/2018-6-21.pdf

Technical Specifications
Link to Measurement Tools
Quality Indicator Confirmed to be Part of a Program Used to Monitor Quality and Safety of Care Among Older People at a Population-Level between 2012-2022
No
Assessed by the Australian Consortium for Aged Care Collaborators as Generally Containing Good Properties (Importance and Scientific Acceptability)
No
Australian Consortium for Aged Care Endorsed
No
Can the Quality Indicator be Readily Implemented at a Population Level in Australia Given its Current Data Landscape?
Implementation of this quality indicator was not assessed.
Identified by PHARMA-Care Project
No
Upload Date
31 March 2026