Proportion of Patients With Their Caregiver Burden Formally Assessed

Identifying Attributes

Care Settings
Palliative Care
Country
United States of America
Publishing Organisation
Center to Advance Palliative Care (CAPC) National Palliative Care Registry™, transitioned to Pallative Care Quality Collaborative Registry
Type of Quality Indicator
Process
IOM Quality Dimension
Person-Centredness
Domain
Social Aspects of Care

Defining Attributes

Definition

Proportion of patients with their caregiver burden formally assessed.

Numerator

Number of patients with their caregiver burden formally assessed

Denominator

Total number of patients

Exclusions
Use of Risk Adjustment
No
Risk Adjustments
Stratifications

Collection and Reporting Attributes

Type of Data Collection
Administrative data
Data Collection Methods

The Centre to Advance Palliative Care (CAPC) maintained the National Palliative Care Registry™ and in early 2021 the Palliative Care Quality Collaborative (PCQP) launched a new unified national palliative care registry that includes all historic National Palliative Care Registry™ data. The National Palliative Care Registry™ collected data once per year via an annual survey on participating palliative care programs operations, service delivery and processes. National Palliative Care Registry™ participation is free and open to all programs (including: hospital, home, office/clinic and nursing homes).

Frequency of Data Collection
Annually
Frequency of Data Collection in Days
365
Reporting Methods
Reporting Frequency
Reporting Frequency in Days
Indicator Has Recommended Targets
No

Source and Reference Attributes

Technical Specifications

Unable to locate. Member based access required to access the Center to Advance Palliative Care (CAPC) Measurement Guide.

Link to Measurement Tools
Quality Indicator Confirmed to be Part of a Program Used to Monitor Quality and Safety of Care Among Older People at a Population-Level between 2012-2022
No
Assessed by the Australian Consortium for Aged Care Collaborators as Generally Containing Good Properties (Importance and Scientific Acceptability)
No
Australian Consortium for Aged Care Endorsed
No
Can the Quality Indicator be Readily Implemented at a Population Level in Australia Given its Current Data Landscape?
Implementation of this quality indicator was not assessed.
Identified by PHARMA-Care Project
No
Upload Date
31 March 2026