The CARE survey is mortality follow back survey that is administered to the bereaved family members of adult persons (age 18 and older) who died of a chronic progressive illness receiving services for at least 48 hours from a home health agency, nursing homes, hospice, or acute care hospital. The survey measures perceptions of the quality of care either in terms of unmet needs, family reports of concerns with the quality of care, and overall rating of the quality of care.

The numerator of the total of bereaved family member reports of concerns with the quality of care in the last 2-7 days of life at that institutional setting. Respondent reports of concerns with the quality of care, their self-efficacy in basic tasks of caregiving, or unmet needs that indicate an opportunity to improved end of life care provided by either a nursing home, hospital, hospice, or home health agency.

Non-traumatic deaths and deaths from chronic progressive illnesses based on ICD 9/10 codes are included. A list will be provided as technical appendix to the proposed survey. Note the survey is for only persons that died with the following services or location of care: nursing home, hospital, hospice, or home health agency

Deaths due to accidents, trauma, during surgery, lethal injection, acute overwhelming infections, and from complications of pregnancy. If there are more than 3 items missing, than a composite score will not be calculated.

None

None

The time-frame is the last 2 days of life up to last week of life spent in a hospice, home health agency, hospital, or nursing home. Suggests that a nursing home, hospice, hospital, home health agency, or health plan contact the persons listed as health care proxy, informant, or next of kin. Once you have contacted that person, we have a series of questions that verifies that this is the right person to interview. If not, one obtains contact information for another respondent.

The Level Of Analysis is performed at Facility level and Population (Community, County or City/Regional and State) level.

Partnership for Quality Measurement. (2023). Available from: p4qm.org/measures/1632

NQF specifications available here: www.qualityforum.org/QPS/QPSTool.aspx?Exact=false&Keyword=affordability#qpsPageState=%7B%22TabType%22%3A1,%22TabContentType%22%3A2,%22SearchCriteriaForStandard%22%3A%7B%22TaxonomyIDs%22%3A%5B%5D,%22SelectedTypeAheadFilterOption%22%3A%7B%22ID%22%3A0,%22FilterOptionLabel%22%3A%221632%22,%22TypeOfTypeAheadFilterOption%22%3A1,%22TaxonomyId%22%3A0,%22FilterOptionLabe%22%3A%221632%22%7D,%22Keyword%22%3A%221632%22,%22PageSize%22%3A%2225%22,%22OrderType%22%3A3,%22OrderBy%22%3A%22ASC%22,%22PageNo%22%3A1,%22IsExactMatch%22%3Afalse,%22QueryStringType%22%3A%22%22,%22ProjectActivityId%22%3A%220%22,%22FederalProgramYear%22%3A%220%22,%22FederalFiscalYear%22%3A%220%22,%22FilterTypes%22%3A0,%22EndorsementStatus%22%3A%22%22,%22MSAIDs%22%3A%5B%5D%7D,%22SearchCriteriaForForPortfolio%22%3A%7B%22Tags%22%3A%5B%5D,%22FilterTypes%22%3A0,%22PageStartIndex%22%3A1,%22PageEndIndex%22%3A25,%22PageNumber%22%3Anull,%22PageSize%22%3A%2225%22,%22SortBy%22%3A%22Title%22,%22SortOrder%22%3A%22ASC%22%7D,%22ItemsToCompare%22%3A%5B%5D,%22SelectedStandardIdList%22%3A%5B%5D,%22PortfolioID%22%3A1127,%22StandardID%22%3A1058,%22EntityTypeID%22%3A1%7D

Resource guide with separate chapter on conducting the survey: www.chcr.brown.edu/pcoc/resourceguide.htm

p4qm.org/measures/1632

NQF Measure #1632 (endorsement removed 19 August 2014)