Next of Kin Given Information About Transition to End-Of-Life Care
Identifying Attributes
Care Settings
Country
Publishing Organisation
Type of Quality Indicator
IOM Quality Dimension
Domain
Defining Attributes
Definition
Did the person's next of kin(s) receive information about transition to end-of-life care, i.e. an individually tailored and informed conversation with a physician that is documented in the medical records about being in the final stage of life Yes No No offered but declined Had no known close friend(s)/relative(s) Don't know.
Numerator
The proportion of patients whose next of kin(s) receive information about transition to end-of-life care.
Denominator
All patients registered in the Swedish Registry of Palliative Care for same period.
Exclusions
Use of Risk Adjustment
Risk Adjustments
Stratifications
Data Attributes
Type of Data Collection
Data Collection Methods
The end-of-life questionnaire (ELQ) is the main source of register data in the Swedish Register of Palliative Care (SRPC). The ELQ is completed by healthcare staff after the death of a patient and focuses on the last week of life. Registration in the SRPC is web-based, but some units first complete a paper version of the ELQ which is later used to complete the web form. Limited other details were available in English about data collection processes for the measurement of this indicator in the Swedish Registry of Palliative Care.
Frequency of Data Collection
Frequency of Data Collection in Days
Reporting Methods
Public reporting.
Reporting Frequency
Reporting Frequency in Days
Indicator Has Recommended Targets
Source and Reference Attributes
Evidence Source
Multiple sources:
palliativregistret.se/media/2ptn1rx4/d%C3%B6dsfallsenk%C3%A4t-220101-engelsk.pdf Martinsson, L., Lundström, S., & Sundelöf, J. (2020). Better quality of end-of-life care for persons with advanced dementia in nursing homes compared to hospitals: A swedish national register study. BMC Palliative Care, 19, 1-9. doi:https://doi.org/10.1186/s12904-020-00639-5