Whether there was a documented decision by a physician to shift treatment and care to end-of-life care.

The end of life questionnaire item to measure this indictor is: Do the medical records include a documented decision by the physician responsible (in free text or as a classification code) to shift treatment/care to end-of-life care? Yes No Don't know.

The proportion of patients with a documented decision by the physician responsible to shift treatment/care to end-of-life care.

All patients registered in the Swedish Registry of Palliative Care for same period.

The end-of-life questionnaire (ELQ) is the main source of register data in the Swedish Register of Palliative Care (SRPC). The ELQ is completed by healthcare staff after the death of a patient and focuses on the last week of life. Registration in the SRPC is web-based, but some units first complete a paper version of the ELQ which is later used to complete the web form. Limited other details were available in English about data collection processes for the measurement of this indicator in the Swedish Registry of Palliative Care.

Public reporting.

Multiple sources:

palliativregistret.se/media/2ptn1rx4/d%C3%B6dsfallsenk%C3%A4t-220101-engelsk.pdf Martinsson, L., Lundström, S., & Sundelöf, J. (2020). Better quality of end-of-life care for persons with advanced dementia in nursing homes compared to hospitals: A swedish national register study. BMC Palliative Care, 19, 1-9. doi:https://doi.org/10.1186/s12904-020-00639-5