Families' and Others' Experience of Care
Identifying Attributes
Care Settings
Country
Publishing Organisation
Type of Quality Indicator
IOM Quality Dimension
Domain
Defining Attributes
Definition
This summary indicator includes 4 questions/statements on how families and others would rate the care and support given and communication.
Numerator
Two of the questions/statements include response options on a 6-point Likert-scale and summary score methods as follows: Strongly agree=4, Agree=3, Neither agree not disagree=2, Disagree=1, Strongly disagree =zero, N/A/Not sure=zero). These two questions are: I felt that staff looking after the person communicated sensitively with them; I was communicated to by staff in a sensitive way. Two of the questions/statements include response options on a 6-point Likert-scale and summary score methods as follows: Outstanding=4, Excellent=3, Good=2, Fair=1, Poor=0, Not sure=0. These two questions are: Overall, how would you rate the care and support given by the hospital to the person who died during the final admission?; Overall, how would you rate the care and support given by the hospital to you and other close relatives or friends during the person's final admission in hospital?. The maximum possible score for this summary indicator is 16.
Denominator
Exclusions
Hospices are excluded from participating in the National Audit of Care at the End of Life (NACEL) program. All non-NHS acute sites and community hospital providers of adult inpatient care in England and Wales were ineligible to take part in the audit. Data for this summary indicator were collected via a Quality Survey, which is an online survey used to capture the views of relatives, carers and those important to the person who died, on their experiences of the care and support received at the end of life.
Use of Risk Adjustment
Risk Adjustments
None
Stratifications
The national and hospital-level summary scores are not stratified. The proportions of response options to the four individual data collection questions contained within this summary indicator are reported by audit year.
Collection and Reporting Attributes
Type of Data Collection
Data Collection Methods
Audit participants (based at eligible NHS acute and community hospitals/trusts in England and Wales) were requested to send Quality Survey invitations to the bereaved families and others from all deaths occurring during the audit period. The survey is conducted online with a unique code generated for each bereaved carer by participating trusts and must be submitted prior to the pre-defined audit data collection period closure date.
Frequency of Data Collection
Frequency of Data Collection in Days
Reporting Methods
Public reporting
Reporting Frequency
Reporting Frequency in Days
Indicator Has Recommended Targets
Source and Reference Attributes
Evidence Source
National Audit of Care at the End of Life (NACEL) program 2022/23 Report: www.hqip.org.uk/wp-content/uploads/2023/07/Ref.-380-NACEL-2022-Summary-Report-Final.pdf National Audit of Care at the End of Life (NACEL) program 2022/23 Appendices and specifications: www.hqip.org.uk/wp-content/uploads/2023/07/Ref.-380-NACEL-2022-Appendices-Final.pdf
Technical Specifications
Unable to locate full technical specification details. Some details and methods for scoring available here in Appendix 16 (page 34-40): www.hqip.org.uk/wp-content/uploads/2023/07/Ref.-380-NACEL-2022-Appendices-Final.pdf