This summary indicator includes 5 questions covering families and others needs, emotional, practical, spiritual, religious and cultural support and being informed about the patient's condition and treatment. All questions include response options on a 5-point Likert-scale (Strongly agree, Agree, Neither agree not disagree, Disagree, Strongly disagree or N/A/Not sure). Questions include: I was asked about my needs; I was given enough emotional help and support by staff; I was given enough practical support (for example with finding refreshments and parking arrangements); I was given enough spiritual/religious/cultural support; I was kept well informed and had enough opportunity to discuss their condition and treatment with staff.

All 5 questions include response options on a 6-point Likert-scale. For the summary score method, the following scores are assigned for all questions: Strongly agree=4; Agree=3; Neither agree not disagree=2; Disagree=1; Strongly disagree=zero; N/A/Not sure= zero).The maximum possible score for this summary indicator is 20.

Hospices are excluded from participating in the National Audit of Care at the End of Life (NACEL) program. All non-NHS acute sites and community hospital providers of adult inpatient care in England and Wales were ineligible to take part in the audit. Data for this summary indicator were collected via a Quality Survey, which is an online survey used to capture the views of relatives, carers and those important to the person who died, on their experiences of the care and support received at the end of life.

None

The national and hospital-level summary scores are not stratified. The proportions of response options to the five individual data collection questions contained within this summary indicator are reported by audit year.

Audit participants (based at eligible NHS acute and community hospitals/trusts in England and Wales) were requested to send Quality Survey invitations to the bereaved families and others from all deaths occurring during the audit period. The survey is conducted online with a unique code generated for each bereaved carer by participating trusts and must be submitted prior to the pre-defined audit data collection period closure date.

Public reporting.

National Audit of Care at the End of Life (NACEL) program 2022/23 Report: www.hqip.org.uk/wp-content/uploads/2023/07/Ref.-380-NACEL-2022-Summary-Report-Final.pdf National Audit of Care at the End of Life (NACEL) program 2022/23 Appendices and specifications: www.hqip.org.uk/wp-content/uploads/2023/07/Ref.-380-NACEL-2022-Appendices-Final.pdf

Unable to locate full technical specification details. Some details and methods for scoring available here in Appendix 16 (page 34-40): www.hqip.org.uk/wp-content/uploads/2023/07/Ref.-380-NACEL-2022-Appendices-Final.pdf