Involvement in Decision-Making and Treatment Options

Identifying Attributes

Care Settings
Hospital Care
Country
Canada
Publishing Organisation
Canadian Institute for Health Information (CIHI)
Type of Quality Indicator
Outcome
IOM Quality Dimension
Person-Centredness
Domain
Consumer Experience

Defining Attributes

Definition

This measure describes whether patients and family/friends were involved in care decisions. Results show the percentage of patients who responded most favourably in the Canadian Patient Experiences Survey - Inpatient Care (CPES-IC) survey. Participants are asked to respond to the following questions: Q35. Were you involved as much as you wanted to be in decisions about your care and treatment?; Q36. Were your family or friends involved as much as you wanted in decisions about your care and treatment?

Numerator

A subset of the denominator that represents patients age 18 and older who chose the most positive responses to the questions about involvement in decision-making and treatment options in the CPES-IC survey (questions 35 and 36). Participants are asked to respond to the following questions: Q35. Were you involved as much as you wanted to be in decisions about your care and treatment?; Q36. Were your family or friends involved as much as you wanted in decisions about your care and treatment?

Denominator

Patients age 18 and older who responded to questions regarding involvement in decision-making and treatment options in the CPES-IC survey (questions 35 and 36).

Exclusions

Non-response categories (refusal, don't know, not stated). Records with invalid health card number. Records with missing or invalid discharge date. Newborn, stillbirth or cadaveric donor records. Records with discharge as death, self sign-out or patient not returning from a pass. Patients receiving care primarily for a psychiatric condition or mental health disorder. Patients who were in an alternate level of care. Patients with a substance-use disorder. Patients discharged to another facility such as residential care, group/supportive living or a correctional facility. Patients excluded for sensitive or compassionate reasons. Patients who have duplicate submissions.

Use of Risk Adjustment
Yes
Risk Adjustments

Sample weighted, non-response weighted, age–sex standardised to the hospital Discharge Abstract Database (DAD) population, adjusted for survey mode (mail, telephone, online) and adjusted for service line (medical, surgical, maternity).

Stratifications

By hospital, peer group and reporting level: National, Province/Territory, Region, Facility.

Collection and Reporting Attributes

Type of Data Collection
Surveys
Data Collection Methods

Canadian Patient Experiences Reporting System (CPERS)

Frequency of Data Collection
1-3 years
Frequency of Data Collection in Days
365-1096
Reporting Methods

Online tool: Your Health System

Reporting Frequency
Annually
Reporting Frequency in Days
365
Indicator Has Recommended Targets
No

Source and Reference Attributes

Link to Measurement Tools
Quality Indicator Confirmed to be Part of a Program Used to Monitor Quality and Safety of Care Among Older People at a Population-Level between 2012-2022
Yes
Assessed by the Australian Consortium for Aged Care Collaborators as Generally Containing Good Properties (Importance and Scientific Acceptability)
Yes
Australian Consortium for Aged Care Endorsed
Yes
Identified by PHARMA-Care Project
No
Upload Date
02 December 2025