Next of Kin Offered a Follow-Up Talk After Death of the Patient

Identifying Attributes

Care Settings
Dementia Care
Country
Sweden
Publishing Organisation
Swedish Register of Palliative Care (SRPC)
Type of Quality Indicator
Process
IOM Quality Dimension
Person-Centredness
Domain
Palliative Care

Defining Attributes

Definition

Next of kin offered a follow-up talk after death of the patient

Numerator

Number of patients whose next of kin were offered a follow-up talk after death of the patient

Denominator

Number of patients who died

Exclusions
Use of Risk Adjustment
No
Risk Adjustments
Stratifications

In this paper: age, gender and place of death (hospital or nursing home) For registry: counties/regions and/or municipalities separated on different types of care units

Collection and Reporting Attributes

Type of Data Collection
Surveys
Data Collection Methods

Data collected via paper form or at the website

Frequency of Data Collection
Continuous
Frequency of Data Collection in Days
1
Reporting Methods

Annual Report and online real-time reports utdata.palliativregistret.org/ (but not dementia specific)

Reporting Frequency
Realtime and annually
Reporting Frequency in Days
1-365
Indicator Has Recommended Targets
No

Source and Reference Attributes

Evidence Source

Martinsson, L., Lundstrom, S., & Sundelof, J. (2020). Better quality of end-of-life care for persons with advanced dementia in nursing homes compared to hospitals: A Swedish national register study. BMC Palliative Care, 19(1), 135.

Technical Specifications
Link to Measurement Tools

Swedish Register of Palliative Care Survey

Quality Indicator Confirmed to be Part of a Program Used to Monitor Quality and Safety of Care Among Older People at a Population-Level between 2012-2022
No
Assessed by the Australian Consortium for Aged Care Collaborators as Generally Containing Good Properties (Importance and Scientific Acceptability)
No
Australian Consortium for Aged Care Endorsed
No
Identified by PHARMA-Care Project
No
Upload Date
02 December 2025