Advance Care Planning and Palliative Care Counselling for Patients With Dementia

Identifying Attributes

Care Settings
Dementia Care
Country
United States of America
Publishing Organisation
American Academy of Neurology (AAN) & American Psychiatric Association (APA): Dementia Management Quality Measurement Set
Type of Quality Indicator
Process
IOM Quality Dimension
Person-Centredness
Domain
Person-Centred Care

Defining Attributes

Definition

Percentage of patients with dementia who have an advance care plan or surrogate decisions maker documented in the medical record or documentation in the medical record that an advance care plan was discussed but the patient did not wish or was not able to name a surrogate decision maker or provide an advance care plan AND Percentage of patients with dementia or their surrogate decision maker who received comprehensive counselling regarding ongoing palliation & symptom management, and end of life decisions within two years of initial diagnosis or assumption of care

Numerator

Patients with dementia who 1) have an advance care plan or surrogate decisions maker documented in the medical record or documentation in the medical record that an advance care plan was discussed but the patient did not wish or was not able to name a surrogate decision maker or provide an advance care plan AND Patients with dementia or their surrogate decision maker who 2) received comprehensive counselling regarding ongoing palliation & symptom management, and end of life decisions within two years of initial diagnosis or assumption of care.

Denominator

All patients with dementia

Exclusions

Patients who at time of intake had advanced dementia for whom there was no record of advance care planning or surrogate decision-maker prior to their admission.

Use of Risk Adjustment
No
Risk Adjustments
Stratifications

Data Attributes

Type of Data Collection
Data Collection Methods
Frequency of Data Collection
Frequency of Data Collection in Days
Reporting Methods
Reporting Frequency
Reporting Frequency in Days
Indicator Has Recommended Targets
No

Source and Reference Attributes

Evidence Source

Sanders, A. E., Nininger, J., Absher, J., Bennett, A., Shugarman, S., & Roca, R. (2017). Quality improvement in neurology: Dementia management quality measurement set update. American Journal of Psychiatry, 174(5), 493-498. Schultz, S. K., Llorente, M. D., Sanders, A. E., Tai, W. A., Bennett, A., Shugarman, S., & Roca, R. (2020). Quality improvement in dementia care: Dementia management quality measurement set 2018 implementation update. American Journal of Psychiatry, 177(2), 175-181.

Technical Specifications

Appendix in Sanders, A. E., Nininger, J., Absher, J., Bennett, A., Shugarman, S., & Roca, R. (2017). Quality improvement in neurology: Dementia management quality measurement set update. American Journal of Psychiatry, 174(5), 493-498.

Link to Measurement Tools
Quality Indicator Confirmed to be Part of a Program Used to Monitor Quality and Safety of Care Among Older People at a Population-Level between 2012-2022
No
Assessed by the Australian Consortium for Aged Care Collaborators as Generally Containing Good Properties (Importance and Scientific Acceptability)
No
Australian Consortium for Aged Care Endorsed
No
Identified by PHARMA-Care Project
No
Upload Date
23 July 2025