Percentage of patients with a diagnosis of a qualifying dementing disorder or disease whose diagnosis has been disclosed to them and, if available, their primary caregiver

Patients and patient/caregiver dyads with a diagnosis of a qualifying dementing disorder or disease who have been told (1) that they have dementia and (2) what disease is responsible. Diagnosis is defined as the provider's best current opinion about dementia aetiology, which may include a disclosure that diagnosis remains unknown or that a previous diagnosis must be revised.

All patients with a diagnosis of a qualifying dementing disorder or disease

Diagnosis previously disclosed (i.e., patient or caregiver provides diagnosis to provider, previous disclosure documented in medical record, or patient or caregiver states they were previously informed.) , Disclosure offered, but patient declines information on their diagnosis, Patient does not have caregiver

Sanders, A. E., Nininger, J., Absher, J., Bennett, A., Shugarman, S., & Roca, R. (2017). Quality improvement in neurology: Dementia management quality measurement set update. American Journal of Psychiatry, 174(5), 493-498. Schultz, S. K., Llorente, M. D., Sanders, A. E., Tai, W. A., Bennett, A., Shugarman, S., & Roca, R. (2020). Quality improvement in dementia care: Dementia management quality measurement set 2018 implementation update. American Journal of Psychiatry, 177(2), 175-181.

Appendix in Sanders, A. E., Nininger, J., Absher, J., Bennett, A., Shugarman, S., & Roca, R. (2017). Quality improvement in neurology: Dementia management quality measurement set update. American Journal of Psychiatry, 174(5), 493-498.